Sep 20, 2013 7:45 PM by Akeam Ashford

Jennings: Boy Lives With Rare Lung Disease

A Jennings couple is organizing Color Phor A Cure, a 5K run to raise awareness for their son's life-threatening lung condition.

Three-year-old Joel Belt suffers from Pulmonary Hypertension (PH), a condition thats causes his heart to work harder.

Through a series of blood test that measure stress on the heart, parents Josh and Lindsey found out Joel is suffering from PH.

"I think medically he shouldn't be a live, and we know god has his hand on him, but it's obviously very severe," says Lindsey Belt.

A healthy kid's heart stress measures at 100. At his diagnoses, Joel's was at 15,000.

Joel's mom says a regular, healthy child's heart looks like long branches on a tree.

"In a ph patient it would be like constricted and old crooked fingers," says Lindsey Belt.

In Joel's case, his blood vessels in the right-side of his heart are working double time.

Joel's chances to live are slim. He only has two options to survive: wear a backpack full of medicines that constantly pump into his heart, or have a double lung transplant.

"It seems clear cut, like if the transplant can fix it why would you not do it," says Lindsey Belt.

His parents say after they were told the lung is the most rejected organ in the body, they don't know if they want to put him through that pain.

"It is what it is you know, so we take everyday and try to enjoy as much of him as we can," says Josh Belt.

The 5K fundraiser is Oct.12. It is the first of its kind for PH.

100% of the money raised will go to the only pediatric research program in the nation.

So far, the couple has raised $49,000.




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